Реших да пусна темата, понеже днес попаднах на ето тази молба за съдействие и истории на майки, които са изживели загуба, за да може да се съставят материали как да се подпомагат майките:
http://www.lifecirclecc.com/research.html
От страницата може да се изтегли и попълни въпросник - като той служи само за насочване, иначе човек може да разкаже историята в какъвто формат иска. За съжаление всичко е на английски, но все пак ако някой прояви интерес със сигурност ще е от помощ.
Въпросите изясняват първо обстоятелствата около загубата, чувствата на майката и каква помощ е била предложена за справяне с психологическите и физическите последици, а конкретните относно лактацията са:
Накратко на български най-важните:
На кой етап ви беше предложена информация и помощ за справяне с лактацията след загубата.
Каква информация ви беше предложена - за потискане на лактацията, изцеждане на млякото или кърмене на бебе, което не се очаква да оживее, даряване на млякото в банка за кърма, изцеждане или кърмене на оцелял близнак или тризнак или продължаване на кърменето при по-гоямо дете.
Знаехте ли нещо за тези варианти от преди това - ако да, какво и откъде имахте или се сдобихте с информацията
Каква подкрепа ви беше предложена за да решите кое да изберете
Спряхте ли лактацията след загубата? Защо решихте така - или защо не го направихте? По какъв начин? Колко време ви отне? Как се чувствахте физически и емоционално по отн на лактацията? Предупредиха ли ви за препълването на гърдите? Какви мерки ви бяха предложени за справяне с него? Каква подкрепа получихте? А каква не получихте, а бихте искали да получите?
Същите въпроси се задават и за всеки от другите варианти - изцеждане на млякото или кърмене на бебе, което не се очаква да оживее, даряване на млякото в банка за кърма, изцеждане или кърмене на оцелял близнак или тризнак или продължаване на кърменето при по-гоямо дете.
Има ли нещо, което бихте променили сега при справянето с лактацията след загубата, ако можехте? Какво и защо?
Какво бихте препоръчали на лекарите и медицинския персонал, които се грижат за жени в такава ситуация? Каква информация и подкрепа бихте желали да получите? Кога (на кой етап) и как да бъде поднесена?
Какво значение имаше за вас справянето с лактацията след загубата по отн на болката и живота след това?
Какви бяха реакциите на мед. персонал относно избора ви за справяне с лактацията? Какво беше полезно, какво не беше - и какво ви нарани?
А при роднините и приятелите - същите въпроси.
Какви бяха плановете ви за кърмене на изгубеното бебе - и как се съотнася действителния ви опит в тази ситуация с плановете, които имахте?
http://www.lifecirclecc.com/research.html
От страницата може да се изтегли и попълни въпросник - като той служи само за насочване, иначе човек може да разкаже историята в какъвто формат иска. За съжаление всичко е на английски, но все пак ако някой прояви интерес със сигурност ще е от помощ.
Въпросите изясняват първо обстоятелствата около загубата, чувствата на майката и каква помощ е била предложена за справяне с психологическите и физическите последици, а конкретните относно лактацията са:
Цитат
8. At what point, if any, were you offered information and support for the management of lactation or breastfeeding, given that your baby was expected to die or had died?
9. What information were you given about the management of lactation or breastfeeding? For example, what were you told, if anything, about such options as suppressing lactation, expressing your milk for or breastfeeding a baby not expected to live, donating already stored milk to a human milk bank after your baby’s death, expressing your milk and donating it to a human milk bank after your baby’s death, expressing milk for or breastfeed a living twin or higher order multiple, or continuing to breastfeed an older sibling?
10. Did you know any of the information you were given before it was offered to you? If you knew some of the information you were given before it was offered to you, what did you know and where did you find the information?
11. What support were you offered for engaging in the options you were told about?
12. Did you suppress lactation after your baby died? Why or why not? If you did, how did you do this? How long did it take? What was this experience like for you, emotionally and physically? Were you informed that you might experience engorgement (swollen and painful breasts) as your breasts returned to a non-lactating state? Were you told how to avoid or treat engorgement while suppressing lactation? If so, what suggestions were you given? What support did you receive during this experience? What information and support did you need that you did not receive?
13. Did you express your milk for or breastfeed a baby not expected to live? Why or why not? If you did, how did you do this? What was the experience like for you, emotionally and physically? What support did you receive during this experience? What information and support did you need that you did not receive?
14. Did you donate any milk that was expressed and stored before your baby died to a human milk bank after your baby died? Why or why not? If did, how did you do this? What was this experience like for you emotionally and physically? What support did you receive during this experience? What information and support did you need that you did not receive?
15. Did you express your milk after your baby died and donate it to a human milk bank? Why or why not? If you did, how did you do this? What was expressing milk and donating it like for you, emotionally and physically? How long did you continue expressing milk and donating it? How did you stop expressing milk and donating it? What was stopping like for you, emotionally and physically? What support did you receive during this experience? What information and support did you need that you did not receive?
16. Did you express your milk for or breastfeed a living twin or higher order multiple after your baby died? Why or why not? If you did, how did you do this? What was this experience like for you, emotionally and physically? What support did you receive during this experience? What information and support did you need that you did not receive?
17. Did you continue to breastfeed an older sibling after your baby died? Why or why not? If you did, how did you do this? What was this experience like for you, emotionally and physically? What support did you receive during this experience? What information and support did you need that you did not receive?
18. If you could go back and do anything differently regarding the management of lactation or breastfeeding, would you do anything differently? If so, what would you do differently and why?
19. If you could give your advice to health care providers who are in the position of providing information and support to bereaved mothers about the management of lactation and breastfeeding or could tell them anything at all, what would you tell them? What information and support would you recommend that they provide? When would you recommend that they give this information and support? How would you recommend that they give this information and support? How would you recommend that they help a mother in her decision making about the management of lactation and breastfeeding?
20. What did your experience of lactation, suppressing lactation, expressing your milk and donating it, expressing milk for or breastfeeding a baby not expected to live, expressing milk for or breastfeeding a living twin or higher order multiple, and/or breastfeeding an older sibling mean to you in the context of your loss and grief?
21. What were the reactions of health care providers to the choices you made regarding the management of lactation and breastfeeding? What was helpful? What was unhelpful? What was hurtful?
22. What were the reactions of your family and friends to the choices you made regarding the management of lactation and breastfeeding? What was helpful? What was unhelpful? What was hurtful?
23. What had you expected your lactation and/or breastfeeding experience to be like for this baby? How did your actual experience of lactation and/or breastfeeding compare with what you had planned for and expected?
9. What information were you given about the management of lactation or breastfeeding? For example, what were you told, if anything, about such options as suppressing lactation, expressing your milk for or breastfeeding a baby not expected to live, donating already stored milk to a human milk bank after your baby’s death, expressing your milk and donating it to a human milk bank after your baby’s death, expressing milk for or breastfeed a living twin or higher order multiple, or continuing to breastfeed an older sibling?
10. Did you know any of the information you were given before it was offered to you? If you knew some of the information you were given before it was offered to you, what did you know and where did you find the information?
11. What support were you offered for engaging in the options you were told about?
12. Did you suppress lactation after your baby died? Why or why not? If you did, how did you do this? How long did it take? What was this experience like for you, emotionally and physically? Were you informed that you might experience engorgement (swollen and painful breasts) as your breasts returned to a non-lactating state? Were you told how to avoid or treat engorgement while suppressing lactation? If so, what suggestions were you given? What support did you receive during this experience? What information and support did you need that you did not receive?
13. Did you express your milk for or breastfeed a baby not expected to live? Why or why not? If you did, how did you do this? What was the experience like for you, emotionally and physically? What support did you receive during this experience? What information and support did you need that you did not receive?
14. Did you donate any milk that was expressed and stored before your baby died to a human milk bank after your baby died? Why or why not? If did, how did you do this? What was this experience like for you emotionally and physically? What support did you receive during this experience? What information and support did you need that you did not receive?
15. Did you express your milk after your baby died and donate it to a human milk bank? Why or why not? If you did, how did you do this? What was expressing milk and donating it like for you, emotionally and physically? How long did you continue expressing milk and donating it? How did you stop expressing milk and donating it? What was stopping like for you, emotionally and physically? What support did you receive during this experience? What information and support did you need that you did not receive?
16. Did you express your milk for or breastfeed a living twin or higher order multiple after your baby died? Why or why not? If you did, how did you do this? What was this experience like for you, emotionally and physically? What support did you receive during this experience? What information and support did you need that you did not receive?
17. Did you continue to breastfeed an older sibling after your baby died? Why or why not? If you did, how did you do this? What was this experience like for you, emotionally and physically? What support did you receive during this experience? What information and support did you need that you did not receive?
18. If you could go back and do anything differently regarding the management of lactation or breastfeeding, would you do anything differently? If so, what would you do differently and why?
19. If you could give your advice to health care providers who are in the position of providing information and support to bereaved mothers about the management of lactation and breastfeeding or could tell them anything at all, what would you tell them? What information and support would you recommend that they provide? When would you recommend that they give this information and support? How would you recommend that they give this information and support? How would you recommend that they help a mother in her decision making about the management of lactation and breastfeeding?
20. What did your experience of lactation, suppressing lactation, expressing your milk and donating it, expressing milk for or breastfeeding a baby not expected to live, expressing milk for or breastfeeding a living twin or higher order multiple, and/or breastfeeding an older sibling mean to you in the context of your loss and grief?
21. What were the reactions of health care providers to the choices you made regarding the management of lactation and breastfeeding? What was helpful? What was unhelpful? What was hurtful?
22. What were the reactions of your family and friends to the choices you made regarding the management of lactation and breastfeeding? What was helpful? What was unhelpful? What was hurtful?
23. What had you expected your lactation and/or breastfeeding experience to be like for this baby? How did your actual experience of lactation and/or breastfeeding compare with what you had planned for and expected?
Накратко на български най-важните:
На кой етап ви беше предложена информация и помощ за справяне с лактацията след загубата.
Каква информация ви беше предложена - за потискане на лактацията, изцеждане на млякото или кърмене на бебе, което не се очаква да оживее, даряване на млякото в банка за кърма, изцеждане или кърмене на оцелял близнак или тризнак или продължаване на кърменето при по-гоямо дете.
Знаехте ли нещо за тези варианти от преди това - ако да, какво и откъде имахте или се сдобихте с информацията
Каква подкрепа ви беше предложена за да решите кое да изберете
Спряхте ли лактацията след загубата? Защо решихте така - или защо не го направихте? По какъв начин? Колко време ви отне? Как се чувствахте физически и емоционално по отн на лактацията? Предупредиха ли ви за препълването на гърдите? Какви мерки ви бяха предложени за справяне с него? Каква подкрепа получихте? А каква не получихте, а бихте искали да получите?
Същите въпроси се задават и за всеки от другите варианти - изцеждане на млякото или кърмене на бебе, което не се очаква да оживее, даряване на млякото в банка за кърма, изцеждане или кърмене на оцелял близнак или тризнак или продължаване на кърменето при по-гоямо дете.
Има ли нещо, което бихте променили сега при справянето с лактацията след загубата, ако можехте? Какво и защо?
Какво бихте препоръчали на лекарите и медицинския персонал, които се грижат за жени в такава ситуация? Каква информация и подкрепа бихте желали да получите? Кога (на кой етап) и как да бъде поднесена?
Какво значение имаше за вас справянето с лактацията след загубата по отн на болката и живота след това?
Какви бяха реакциите на мед. персонал относно избора ви за справяне с лактацията? Какво беше полезно, какво не беше - и какво ви нарани?
А при роднините и приятелите - същите въпроси.
Какви бяха плановете ви за кърмене на изгубеното бебе - и как се съотнася действителния ви опит в тази ситуация с плановете, които имахте?
, т. нар. изолатор с най-безумното отношение на персонал), една от реанимационните акушерки ми даде блистер хапчета за спиране на кърмата. Във въпросния изолетор чак на следващия ден се сетиха, че може да тЕчне кърма. Но пък не им липсваше такт да си обсъдят клюки за оставено в кашон детенце в деня, в който аз загубих моето. Появи се някакъв анонимен доц. Такъв си остана и до края. Движеше се с неизменния антураж от две ужасно гручи стажантки. Вкара реплика: "Ще кърми." Една анонимна акушерка (там други не работят) му заразказва хъката-мъката. Отговори й: "Знам" и се обърна към мен: "Ти сутиен нямаш ли? Вземи си стегни гърдите". И понеже не ми беше до естестичните му изисквания го пропуснах. Но не пропуснах да слушам през нощта плача на гладното подхвърлено момченце. Тогава кърмата ми наистина започна да се лее. А аз исках детенцето. Исках и да го кърмя. Никой не ми предложи. 
След това вече имах пръскащи се от болка гърди. Отидох в кварталната поликлиника и там простосмъртна АГ ми обясни, че тези хапчета не се пият точно така. Предписа ми схема, по която да започна отново да бромокриптопия. Този път продължи около 40 дни. 10 дни по 1 сутрин и вечер. 5-6 по половин сутрин и вечер. 7-8 по половинка сутрин. Останалите до края на започнатия блистер през ден до изчерпването му. 
Много добре зная как се чувствате. в неделя стават 6 месеца ,откакто бебето ми почина.
